When I was a baby, I didn’t respond when my mom came into the room. She was a bit concerned about this. Also, my eyes shifted from side to side constantly. After a while, she took me into the doctor fearing the worst. The doctor confirmed her fears when he told my parents that I had a disease that would kill me by the age of two. They were devastated. I turned two however, and I did not die. I was taken to the doctor again and this doctor told my parents that I was infact blind. Well, I’m not completely blind, but mostly. I have optic nerve hypoplasia which means that my optic nerve is not big enough to send all the information to my brain.
Now that I was diagnosed, it was time to go to school. Preschool was rather noneventful, just kind of hung out by myself and listen to music the entire time. It was in kindergarten and things became a little crazy.Now that I was diagnosed, it was time to go to school. Preschool was rather noneventful, just kind of hung out by myself and listen to music the entire time. It was in kindergarten when things became a little crazy. MyTeachers decided teach me braille, but I hated it. I later learned that it was because of my fine motor issues, but at the time, I was just a contrary little kid who just refused to read rail. Of course, I could not read print, so braille was my only option. Throughout kindergarten, first, second, and third grade, I faught tooth and nail against braille.At the end of second grade, it was time to take the advanced placement test. My school didn’t even want to give me a test, there has never been any blind person in advanced placement before. My mom thought to let me take the test Celebra, and I excelled at it.At the end of second grade, it was time to take the advanced placement test. My school didn’t even want to give me a test, there has never been any blind person in advanced placement before. My mom faught to let me take the test and I excelled at it. I became The first blind student in an advanced placement school.
It was then the accessibility became a huge issue. Technology was becoming more and more prevalent, and teachers were using it to teach their lessons. The problem is, not all technology was accessible, and I was completely technologically illiterate.first it was blackboard, then Google classroom, then Schoology. All of which not accessible to me. even worse, I had to transition from using braille to using a computer with no notice at all. Basically, one year, they said you’re not using real anymore and handed me a computer expecting me to use it.even worse, I had to transition from using braille to using a computer with no notice at all. Basically, one year, they said you’re not using braille anymore and handed me a computer expecting me to use it. How to learn how to type while trying to complete my assignments. It was miserable. At the end of ninth grade, Covid hit. All the sudden, school was completely online and I did not know what to do. I would not have gotten through it without the help of my mom.
, I am in my senior year of high school and just excited to get it done. It’s seriously like my school does not care if I graduate. They never make anything accessible to me, and don’t even make the effort. mom Hass to send scathing email after scathing email to get them to make things accessible. I Do have one good teacher who really makes the effort, but no one else does.
My blindness has affected me outside of school as well. I have always been musical from a young age, I love to sing, at a point, I decided I wanted to start a band. If I could sea, I would just program up my own background music and sing vocals, but because I can’t, I rely on someone to play the instruments. I am still trying to start a band, and I will try to see if there is any way to excessively program music. I feel like if I wasn’t blind though, I would already have released multiple albums. I write songs a lot in my spare time.
Speaking of writing, I have always found it very difficult to write. When I was younger, I had to write braille, which was incredibly tedious and required a huge machine.once I moved to the computer, it was easier, but still tedious. Typing is very difficult for me because of my fine motor issues. Additionally,my spelling and grammar is really bad because I don’t read print. Even so, I loved writing. I have always had a way with words, and writing is amazing to me. Although it is hard and tedious, I still do it all the time. I have even published a book. I write poetry, songs, short stories, and I’m working on a novel right now.I have always had a way with words, and writing is amazing to me. Although it is hard and tedious, I still do it all the time. I have even published a book. I write poetry, songs, short stories, and I’m working on a novel right now. I do not let my blindness stop me from doing what I love.
My blindness has also made it difficult to spread the word about my Endocannibalism. As I said before, I feel like Endocannibals are not treated fairly by society, and I want to change that. If I could, I would be protesting on the streets right now, but I can’t. I tried to create a YouTube channel, but because I can’t edit videos, no one would watch it. This blog is my way of telling my story and spreading the word in order to hopefully make the world a better place for Endocannibal‘s like me.